<oai_dc:dc xmlns:oai_dc="http://www.openarchives.org/OAI/2.0/oai_dc/" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/oai_dc/ http://www.openarchives.org/OAI/2.0/oai_dc.xsd"><dc:identifier>doi:10.7916/d8-g2b8-n253</dc:identifier><dc:title>Oral history interview with Fred Rickles, 1990</dc:title><dc:creator>Rickles, Frederick R</dc:creator><dc:format>oral histories</dc:format><dc:format>sound recordings</dc:format><dc:type>sound recording - nonmusical</dc:type><dc:subject>Hemophilia--History.--United States</dc:subject><dc:subject>Hemophilia--Social aspects</dc:subject><dc:subject>Hemophilia--Political aspects</dc:subject><dc:subject>AIDS (Disease)--History.--United States</dc:subject><dc:subject>Gene therapy</dc:subject><dc:subject>Physicians</dc:subject><dc:subject>Rickles, Frederick R</dc:subject><dc:subject>National Hemophilia Foundation</dc:subject><dc:description>Early work on laboratory projects related to hemophilia or other aspects of blood clotting while in high school and medical school; training in internal medicine and hematology and affiliation with Mary Gooley Hemophilia Center; involvement in initiating first hemophilia treatment center at University of Connecticut; early involvement in NHF; brief history of the search for the cause and a cure for hemophilia in 1950s through 1970s; early work in a comprehensive care model and aspects of the multi-disciplinary team; involvement in experiments with home care of hemophilia; aspects of the hemophilia "community"; perceived change in time in physicians’ relationships with people with hemophilia; anger towards physicians and other staff among patients with hemophilia and HIV; aspects of denial in response to advent of AIDS in hemophilia community; questions of what to communicate to patients during the early years of AIDS; development of heat treated and purified blood products such as monoclonal and recombinant blood factors; involvement of market forces as driving forces behind such research and development; current work on gene therapy as a treatment for hemophilia; perception of two different constituencies in hemophilia community - one HIV positive and one HIV negative - and their different needs; role of NHF regarding research</dc:description></oai_dc:dc>