Oral history interview with Paul Phillips, 1987


Phillips, Paul (Interviewee)
Resnik, Susan, 1940- (Interviewer)
Oral history interview with Paul Phillips, 1987
Other Titles
Reminiscences of Paul Phillips : oral history, 1987; Oral history of Paul Phillips, 1987
Financial difficulties at NHF in early 1980s; advent of AIDS in hemophilia community; Risk Reduction Program for preventing HIV in people with hemophilia; regionalization of healthcare delivery in hemophilia community; lobbying for congressional support of regional treatment centers; treatment centers versus local NHF chapters as centers for advocacy and so forth; migration of people in hemophilia community to cities with comprehensive care centers; limitations of regional centers; effect of advent of AIDS on comprehensive treatment centers/regionalization; "hemo-homo" wars in early AIDS era; Pediatric AIDS Conferences and hemophilia; HANDI - Hemophilia and AIDS/HIV Network for the Dissemination of Information; involvement of the Henry family in the hemophilia community; roles and responsibilities of NHF; Chapter Outreach Demonstration Project; disagreements between chapters and national office of NHF; possibilities for future cure for hemophilia
Collection Name
Hemophilia oral history collection
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Lobbying; Health services administrators; Phillips, Paul; National Hemophilia Foundation
oral histories
Physical Description
123 pages; 62 pages
Note (Biographical)
Paul Phillips is a pseudonym for the narrator that Susan Resnik used in her book Blood Saga: Hemophilia, AIDS, and the Survival of a Community
Interviewed by Susan Resnik on October 29, 1990 and February 19, 1991
Note (Provenance)
Susan Resnik, Gift, circa 1992
Library Location
Columbia Center for Oral History, Columbia University
Browse Location’s Digital Content
Catalog Record
Also In
Oral History Archives at Columbia
Time-Based Media
Time-Based Media
Persistent URL
Related URLs
Available digital content for this interview.