Oral history interview with Ed Gomperts, 1990

 

Name
Gomperts, Ed (Interviewee)
Title
Oral history interview with Ed Gomperts, 1990
Other Titles
Reminiscences of Ed Gomperts : oral history, 1990; Oral history of Ed Gomperts, 1990
Abstract
Medical training in Johannesburg, south Africa; specialization in hematopathology and coagulation; work in coagulation unit and hemophilia center at Transvaal Memorial Hospital; first use of Factor VIII concentrate in South Africa; establishment of home-care system for black hemophiliacs; experiences at Children’s Hospital of Los Angeles; roles and functions of members of the hemophilia treatment t eam; denial among children and teens with hemophilia; risk-taking behaviors in this group; denial regarding HIV; isolation among people with hemophilia; differences in attitudes towards hemophilia among different ethnic communities; adoptions of children with hemophilia; early response to advent of HIV in hemophilia community; establishment of donor infusion program in response to this; first use of heat-treated Factor VIII; transmission of hepatitis B via blood products; problems screening for hepatitis B; involvement with pharmaceutical companies and issues of research and development; relationship of pharmaceutical companies to National Hemophilia Foundation and the hemophilia community; educating school nurses regarding hemophilia and HIV; "need/hate" relationship between hemophilia patient and hemophilia treatment center; California Hemophilia Council; future treatment with genetically engineered products
Collection Name
Hemophilia oral history collection
Subjects
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Hemophilia in children; Therapeutics; Physicians; Gomperts, Ed; National Hemophilia Foundation
Format
oral histories
Genre
Interviews
Date
1990
Physical Description
27 pages
Note (Provenance)
Susan Resnik, Gift, circa 1992
Language
English
Library Location
Columbia Center for Oral History, Columbia University
Browse Location’s Digital Content
Catalog Record
12169867
Also In
Time-Based Media
Persistent URL
https://dx.doi.org/10.7916/d8-h7ta-n073
Related URLs
Available digital content for this interview.