Oral history interview with Craig Epson-Nelms, 1991

 

Name
Epson-Nelms, Craig (Interviewee)
Title
Oral history interview with Craig Epson-Nelms, 1991
Other Titles
Reminiscences of Craig Epson-Nelms : oral history, 1991; Oral history of Craig Epson-Nelms, 1991
Abstract
Lack of good medical care for people with hemophilia before advent of cryoprecipitate; death of brother with hemophilia due to misdiagnosis; memories of lengthy hospitalizations for bleeding episodes; relationships with other people with hemophilia, nurses, physicians, etc., in the hospital; medical care of people with hemophilia in the U.S. Navy; lack of knowledge of/access to regional hemophilia treatment centers; family background; religious and racial issues in childhood; cigarette smoking and drug use among people with hemophilia; experiences at "hemophilia camp"; the change from Navy medical care to care at regional hemophilia treatment center; change from cryoprecipitate to concentrate in 1980; probable exposure to HIV at this time; involvement in extracurricular activities in high school; early experiences with HIV positivity; early sexual experiences; involvement in peer counseling for AIDS community group; experiences working for a hemophilia home-care company; animosity within hemophilia community toward homosexual people; experiences with social workers in hemophilia community and in AIDS community; development of a gay community in cities in South Carolina; development of a hemophilia community in cities in North and South Carolina; "tribe" versus "community" or "culture"; importance of accepting diversity in the "tribe"
Collection Name
Hemophilia oral history collection
Subjects
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Epson-Nelms, Craig
Format
oral histories; sound recordings
Genre
Interviews
Date
1991
Note (Provenance)
Susan Resnik, Gift, circa 1992
Language
English
Library Location
Columbia Center for Oral History, Columbia University
Browse Location’s Digital Content
Catalog Record
12169861
Also In
Time-Based Media
Oral History Archives at Columbia
Persistent URL
https://dx.doi.org/10.7916/d8-0k6y-vg49
Related URLs
Available digital content for this interview.