Reminiscences of Barbara Chang : oral history, 1990; Oral history of Barbara Chang, 1990
Abstract
Creation of educational manual for families of people with hemophilia; difference between "pharmaceutical company" and "biologicals company"; network of families providers, and so forth; international similarities and differences in hemophilia care; discovery of heat treatment of blood products to destroy HIV virus; education of school personnel regarding hemophilia; changes in blood products for h emophilia treatment over time; clinical trials of recombinant Factor VIII; third-party reimbursement for blood products; service for direct delivery of blood products from manufacturer to patient; patient/family education as part of this home-care service; plasma donors and donor centers; beginnings of Hyland company - Dr. Clarence Hyland, use of albumin to treat hemophilia during World War II, early use of Factors VIII and IX; Judith Graham Poole’s discovery of cryoprecipitate; pharmaceutical/biotechnological advances in hemophilia care
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Caregivers; Health services administrators; Chang, Barbara