<oai_dc:dc xmlns:oai_dc="http://www.openarchives.org/OAI/2.0/oai_dc/" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/oai_dc/ http://www.openarchives.org/OAI/2.0/oai_dc.xsd"><dc:identifier>doi:10.7916/d8-r1p8-y437</dc:identifier><dc:title>Oral history interview with Charles Carman, 1990</dc:title><dc:creator>Carman, Charles</dc:creator><dc:format>oral histories</dc:format><dc:format>sound recordings</dc:format><dc:type>sound recording - nonmusical</dc:type><dc:subject>Therapeutics</dc:subject><dc:subject>Hemophilia in children</dc:subject><dc:subject>Hemophilia--History.--United States</dc:subject><dc:subject>Hemophilia--Social aspects</dc:subject><dc:subject>Hemophilia--Political aspects</dc:subject><dc:subject>Health services administrators</dc:subject><dc:subject>Carman, Charles</dc:subject><dc:subject>National Hemophilia Foundation</dc:subject><dc:subject>World Federation of Hemophilia</dc:subject><dc:description>Childhood in New Mexico; diagnosis of and experience with hemophilia and with hospitalizations for treatment; ethic of voluntarism in hometown and its influence on him; change in treatment from whole blood to fresh frozen plasma to cryoprecipitate and to comprehensive care; issues of "denial"; lack of risk-taking behavior as child/teen with hemophilia; factors which produced many hemophilia leaders out of Ohio, versus people with hemophilia influencing those factors; involvement in local hemophilia chapters; aspects of the hemophilia "community"; experiences with discrimination on the job site due to having hemophilia; involvement in defining state standards for comprehensive care centers; involvement in National Hemophilia Foundation (NHF); problems at NHF and consequent election and experiences as its President; definition of hemophilia "community" and roles and responsibilities of each of its elements; role of the federal government in relation to the hemophilia community; "Blood Money" game/simulation of problems and outcomes in relation to hemophilia care; involvement in World Federation of Hemophilia (WFH); and its international hemophilia training centers; limitations in hemophilia care in developing countries; economic aspects of hemophilia care in the future; possibilities of future cure for hemophilia through gene therapy; changing relationship between WFH and NHF; personal philosophies and rewards of leadership in the hemophilia community</dc:description></oai_dc:dc>