Oral history interview with Robert K. Massie, Jr., 1991


Massie, Robert, 1956- (Interviewee)
Resnik, Susan, 1940- (Interviewer)
Oral history interview with Robert K. Massie, Jr., 1991
Early experiences with hemophilia; teenage years in France and differences in hemophilia treatment there as opposed to the United States; perceived problems with the U.S. health insurance system and the role of pharmaceutical companies in same; aspects of the interdisciplinary team approach to health care delivery; transition from pre-teen years and dependence on parents for health care and adultho od and independence; internship in the U.S. Senate and work on the international distribution of blood products; ambivalent personal attitudes toward hemophilia; importance of ideas versus the physical world; varying consequences as a result of different life attitudes; aspects of the "hemophilia community"; prevalence of female caregivers in a male disease; role of nurse practitioners in allaying fears and in distributing information; "reawakening" of religious faith in college and subsequent decision to attend divinity school; later doctoral work at Harvard Business School; current work as a professor combining economic and religious interests; advent of AIDS and its impact; discovery of positive HIV status and impact on marriage and decisions regarding children; questions regarding the timeliness of distribution of AIDS educational materials by the National Hemophilia Foundation (NHF); "secondary epidemic" of HIV infection in female partners of people with hemophilia; thoughts on the future of hemophilia
Collection Name
Hemophilia oral history collection
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Hemophilia in children; Massie, Robert, 1956-; National Hemophilia Foundation
oral histories
Physical Description
41 pages
Interviewed by Susan Resnik on July 24, 1991
Digitized from analog recordings: Original available in the Columbia Center for Oral History, Rare Book and Manuscript Library, Columbia University Libraries
Note (Provenance)
University of North Carolina Chapel Hill, Health Sciences Library, Gift, 2018
Library Location
Columbia Center for Oral History, Columbia University
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Catalog Record
Also In
Oral History Archives at Columbia
Time-Based Media
Time-Based Media
Persistent URL
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Available digital content for this interview.