Oral history interview with Robert K. Massie, Jr., 1991
Abstract
Early experiences with hemophilia; teenage years in France and differences in hemophilia treatment there as opposed to the United States; perceived problems with the U.S. health insurance system and the role of pharmaceutical companies in same; aspects of the interdisciplinary team approach to health care delivery; transition from pre-teen years and dependence on parents for health care and adultho od and independence; internship in the U.S. Senate and work on the international distribution of blood products; ambivalent personal attitudes toward hemophilia; importance of ideas versus the physical world; varying consequences as a result of different life attitudes; aspects of the "hemophilia community"; prevalence of female caregivers in a male disease; role of nurse practitioners in allaying fears and in distributing information; "reawakening" of religious faith in college and subsequent decision to attend divinity school; later doctoral work at Harvard Business School; current work as a professor combining economic and religious interests; advent of AIDS and its impact; discovery of positive HIV status and impact on marriage and decisions regarding children; questions regarding the timeliness of distribution of AIDS educational materials by the National Hemophilia Foundation (NHF); "secondary epidemic" of HIV infection in female partners of people with hemophilia; thoughts on the future of hemophilia
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Hemophilia in children; Massie, Robert, 1956-; National Hemophilia Foundation
Format
oral histories
Genre
Interviews
Date
1991
Physical Description
41 pages
Note
Interviewed by Susan Resnik on July 24, 1991
Digitized from analog recordings: Original available in the Columbia Center for Oral History, Rare Book and Manuscript Library, Columbia University Libraries
Note (Provenance)
University of North Carolina Chapel Hill, Health Sciences Library, Gift, 2018