Early involvement with husband; consequent volunteer work in hemophilia field; aspects of the hemophilia "community"; involvement in starting a women’s support group (Women’s Outreach Network) for female relatives of people with hemophilia; differences and similarities in needs between wives and mothers of people with hemophilia; effects of HIV on hemophilia community; the future of hemophilia trea tment; "factions" within National Hemophilia Foundation (NHF) and the hemophilia community; The "red bed" as a result of bleeding after losing baby teeth in children with hemophilia; issues regarding HIV testing and confidentiality; importance of the hemophilia community support system
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Hemophilia in children; Nurses; Pierce, Beatrice; National Hemophilia Foundation
Format
oral histories; sound recordings
Genre
Interviews
Date
1990
Note
Interviewed by Susan Resnik on October 24, 1990
Note (Provenance)
University of North Carolina Chapel Hill, Health Sciences Library, Gift, 2018
