<oai_dc:dc xmlns:oai_dc="http://www.openarchives.org/OAI/2.0/oai_dc/" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/oai_dc/ http://www.openarchives.org/OAI/2.0/oai_dc.xsd"><dc:identifier>doi:10.7916/d8-v5ex-dn58</dc:identifier><dc:title>Oral history interview with Beatrice Pierce, 1990</dc:title><dc:creator>Pierce, Beatrice</dc:creator><dc:format>oral histories</dc:format><dc:format>sound recordings</dc:format><dc:type>sound recording - nonmusical</dc:type><dc:subject>Hemophilia--History.--United States</dc:subject><dc:subject>Hemophilia--Social aspects</dc:subject><dc:subject>Hemophilia--Political aspects</dc:subject><dc:subject>AIDS (Disease)--History.--United States</dc:subject><dc:subject>Hemophilia in children</dc:subject><dc:subject>Nurses</dc:subject><dc:subject>Pierce, Beatrice</dc:subject><dc:subject>National Hemophilia Foundation</dc:subject><dc:description>Early involvement with husband; consequent volunteer work in hemophilia field; aspects of the hemophilia "community"; involvement in starting a women’s support group (Women’s Outreach Network) for female relatives of people with hemophilia; differences and similarities in needs between wives and mothers of people with hemophilia; effects of HIV on hemophilia community; the future of hemophilia treatment; "factions" within National Hemophilia Foundation (NHF) and the hemophilia community; The "red bed" as a result of bleeding after losing baby teeth in children with hemophilia; issues regarding HIV testing and confidentiality; importance of the hemophilia community support system</dc:description></oai_dc:dc>