Oral history interview with Toni Gorenc, 1990
Oral history interview with Toni Gorenc, 1990
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- Name
- Gorenc, Toni (Interviewee)
- Resnik, Susan, 1940- (Interviewer)
- Title
- Oral history interview with Toni Gorenc, 1990
- Other Titles
- Reminiscences of Toni Gorenc : oral history, 1990; Oral history of Toni Gorenc, 1990
- Abstract
- Background in research on hepatitis and hemophilia; involvement in establishing the Hemophilia Treatment Center; experiences with different treatment modalities there; dilemma of using Factor VIII concentrates versus exposure to hepatitis; issues of financial cost of hemophilia treatment products; changing relationship with National Hemophilia Foundation; development of hemophilia treatment team an d of "comprehensive care" for people with hemophilia; importance of flexibility in delivering hemophilia care; changing relationship between treatment providers and people with hemophilia; issues of confidentiality regarding hemophilia and HIV; isolation and denial among people with hemophilia; forthcoming use of recombinant products to treat hemophilia; involvement in organizing summer camp for people with hemophilia; problems getting and keeping insurance for camp purposes; experiences teaching people with AIDS about new treatments; possibilities for future cure for hemophilia
- Collection Name
- Hemophilia oral history collection
- Subjects
- Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Health services administrators; Gorenc, Toni
- Format
- oral histories; sound recordings
- Genre
- Interviews
- Date
- 1990
- Note
- Interviewed by Susan Resnik on August 8, 1990
- Note (Provenance)
- Susan Resnik, Gift, circa 1992
- Language
- English
- Library Location
- Columbia Center for Oral History, Columbia University
Browse Location’s Digital Content - Catalog Record
- 12169869
- Also In
- Time-Based Media
- Oral History Archives at Columbia
- Persistent URL
- https://dx.doi.org/10.7916/d8-seq0-z008