<oai_dc:dc xmlns:oai_dc="http://www.openarchives.org/OAI/2.0/oai_dc/" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/oai_dc/ http://www.openarchives.org/OAI/2.0/oai_dc.xsd"><dc:identifier>doi:10.7916/d8-fsws-p811</dc:identifier><dc:title>Oral history interview with Eugene H., 1990</dc:title><dc:creator>H., Eugene</dc:creator><dc:format>oral histories</dc:format><dc:type>mixed material</dc:type><dc:subject>Hemophilia--History.--United States</dc:subject><dc:subject>Hemophilia--Social aspects</dc:subject><dc:subject>Hemophilia--Political aspects</dc:subject><dc:subject>AIDS (Disease)--History.--United States</dc:subject><dc:subject>Blood products</dc:subject><dc:subject>Hemophilia in children</dc:subject><dc:subject>H., Eugene</dc:subject><dc:subject>National Hemophilia Foundation</dc:subject><dc:description>Work as a nurse coordinator at Cornell Medical Center hemophilia program; recruitment to work for Hyland Pharmaceutical company; hemophilia care in the 1950s and 1960s; ostracism and overprotection as a child with hemophilia; initiation of support group for adolescents with hemophilia at Cornell; lack of knowledge among families and people with hemophilia while at Cornell; involvement in creation of Patient Family Teaching Guide; participation in the Nursing Committee of National Hemophilia Foundation; aspects of the hemophilia "community"; issues of denial and acceptance in people with hemophilia; aspects of independence versus interdependence in people with hemophilia; evolution of products for the treatment of hemophilia; move from nursing to work for blood product manufacturing company; first awareness and reaction to HIV in the hemophilia community; usefulness of hemophilia care model for other chronic diseases; uses of genetic engineering to treat/cure hemophilia; involvement in research projects to development new products to treat hemophilia; differences and similarities in HIV between people with hemophilia and other populations; issues of stigma and prejudice for people with hemophilia and people with HIV</dc:description></oai_dc:dc>