Reminiscences of Charles Carman : oral history, 1990; Oral history of Charles Carman, 1990
Abstract
Childhood in New Mexico; diagnosis of and experience with hemophilia and with hospitalizations for treatment; ethic of voluntarism in hometown and its influence on him; change in treatment from whole blood to fresh frozen plasma to cryoprecipitate and to comprehensive care; issues of "denial"; lack of risk-taking behavior as child/teen with hemophilia; factors which produced many hemophilia leaders out of Ohio, versus people with hemophilia influencing those factors; involvement in local hemophilia chapters; aspects of the hemophilia "community"; experiences with discrimination on the job site due to having hemophilia; involvement in defining state standards for comprehensive care centers; involvement in National Hemophilia Foundation (NHF); problems at NHF and consequent election and experiences as its President; definition of hemophilia "community" and roles and responsibilities of each of its elements; role of the federal government in relation to the hemophilia community; "Blood Money" game/simulation of problems and outcomes in relation to hemophilia care; involvement in World Federation of Hemophilia (WFH); and its international hemophilia training centers; limitations in hemophilia care in developing countries; economic aspects of hemophilia care in the future; possibilities of future cure for hemophilia through gene therapy; changing relationship between WFH and NHF; personal philosophies and rewards of leadership in the hemophilia community
Therapeutics; Hemophilia in children; Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; Health services administrators; Carman, Charles; National Hemophilia Foundation; World Federation of Hemophilia
Format
oral histories; sound recordings
Genre
Interviews
Date
1990
Note
Interviewed by Susan Resnik on September 12 and September 14, 1990