Reminiscences of Marvin Gilbert : oral history, 1991; Oral history of Marvin Gilbert, 1991
Abstract
Early involvement in hemophilia treatment at Mt. Sinai and as co-director of NHF; advent of cryoprecipitate as treatment for hemophilia; development of total knee replacements and of arthroscopic surgery and their use in people with hemophilia; references to hemophilia in Egyptian papyruses and in the Talmud; nineteen century literary references to hemophilia; living with hemophilia before recent t reatment developments; development of hemophilia treatment center at Mt. Sinai; advent of physical therapy instead of bracing to treat joint problems in people with hemophilia; component of "hemophilia community"; distinction between being involved and being committed; differences between hemophilia and other chronic diseases; ethical considerations regarding HIV and performing surgery; advent of HIV in hemophilia population - early considerations, phenomenon of denial regarding HIV; hemophilia care providers in international community; hemophilia care in United States versus in other countries; leadership and activities of WFH; discussion of various surgeries to correct joint problems in people with hemophilia; current treatment with Factor VIII made from recombinant DNA; testimony to Senate subcommittee for funding purposes