Oral history interview with Maribel Clements, 1990
Other Titles
Reminiscences of Maribel Clements : oral history, 1990; Oral history of Maribel Clements, 1990
Abstract
Differences in hemophilia care from early 1970s to late ‘70s; use of Factor VIII concentrate versus cryoprecipitate; familial relationships of people with hemophilia; risk-taking behavior among people with hemophilia; involvement in local NHF chapter; NHF Nursing Committee - development of educational materials for schools, families, people with hemophilia - development of Patient/Family Model; pat ient teaching within the hemophilia treatment center; unemployment rate/school absenteeism of people with hemophilia; changing composition of hemophilia treatment team over the years; isolation of people with hemophilia from others in the community; early responses to AIDS; differences in rate of HIV contraction between users of Factor VIII concentrate and cryoprecipitate; AIDS/HIV education for hemophilia care providers; personal emotional response to working with people with AIDS; support networks; involvement of infectious disease specialists in treating hemophiliacs with AIDS/HIV; Women’s/couple support groups
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Nurses; Clements, Maribel; National Hemophilia Foundation