Reminiscences of Sharon Barrett : oral history, 1991; Oral history of Sharon Barrett, 1991
Abstract
Organizational changes in the Program over time; issues involving the distribution of grants; sharing of grants by hemophilia facilities/providers; "affiliate" versus "subcontract" status of grantees; relationship of grants and regionalization of hemophilia care; community/network among people with hemophilia, care providers, and so forth; function of and prominence of the telephone within the hemo philia community/network; effect of AIDS/HIV on the hemophilia community; women’s roles in/effect on hemophilia community; hemophilia model of healthcare delivery; differences in funding from federal government versus voluntary agencies; implementation of the Evaluation Project at NHP; roles of NRCC and HANDI; collaboration between NHP, Centers for Disease Control, and National Hemophilia Foundation (NHF); Tri-Agency Collaboration Model; involvement in planning NHF’s annual meeting; changes in that meeting’s structure; involvement in Chapter Outreach Development Project; outreach to minorities with hemophilia, to women, and so on; role of health educators/use of health education models; development of men’s peer group; service delivery model versus research model regarding hemophilia treatment. Transcript only includes sessions 1 and 3
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Health services administrators; Barrett, Sharon; National Hemophilia Foundation; Centers for Disease Control and Prevention (U.S.)
Format
oral histories; sound recordings
Genre
Interviews
Date
1991
Note
Interviewed by Susan Resnik on January 15, February 26, and March 5, 1991