Oral history interview with Paul Haas, 1990


Haas, Paul (Interviewee)
Resnik, Susan, 1940- (Interviewer)
Oral history interview with Paul Haas, 1990
Other Titles
Reminiscences of Paul Haas : oral history, 1990; Oral history of Paul Haas, 1990
Discovery that son had hemophilia; self-education and choices made regarding how to raise sons with hemophilia; involvement with local hemophilia chapter; involvement with Ohio state hemophilia advisory committee and work with Charles Carman; service on the Board of Directors of the NHF; questions of cost of and reimbursement for hemophilia care products; early emphasis as NHF President on local ch apter involvement; advent of AIDS and of dramatic increase in costs of hemophilia products during tenure as President; aspects of the "hemophilia community(ies)"; questions regarding role and image of NHF regarding relationship of hemophilia to HIV; mix of lay and medical persons in NHF leadership; sources of funding for NHF; education versus research issues at NHF; tripartite leadership model between NHF, Centers for Disease Control (CDC), and Maternal Child Health Bureau (MCHB); "four pillars" of the NHF (staff, chapter leadership, medical leadership, and lay volunteers); need of local chapters to take the next step in dissemination of information; issues of denial in hemophilia community
Collection Name
Hemophilia oral history collection
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Hemophilia in children; Haas, Paul; National Hemophilia Foundation; Centers for Disease Control and Prevention (U.S.)
oral histories; sound recordings
Interviewed by Susan Resnik on September 10, 1990
Note (Provenance)
Susan Resnik, Gift, circa 1992
Library Location
Columbia Center for Oral History, Columbia University
Browse Location’s Digital Content
Catalog Record
Also In
Time-Based Media
Oral History Archives at Columbia
Persistent URL
Related URLs
Available digital content for this interview.