Oral history interview with Dana Kuhn, 1991

 

Name
Kuhn, Dana (Interviewee)
Resnik, Susan, 1940- (Interviewer)
Title
Oral history interview with Dana Kuhn, 1991
Other Titles
Reminiscences of Dana Kuhn : oral history, 1991; Oral history of Dana Kuhn, 1991
Abstract
Childhood experiences with hemophilia; presence of fluctuating serum Factor VIII level; problems playing sports, etc., as teenager with hemophilia; early adulthood involvement with local National Hemophilia Foundation (NHF) chapter; lack of knowledge regarding hemophilia in medical community in southern United States; masculinity and self-image in face of hemophilia; exposure to HIV in Factor VIII supply; subsequent anger at gay community and at pharmaceutical companies; difficulties of researchers in convincing Federal Drug Administration of presence of HIV in blood supply; effect on interpersonal relations of HIV infection; spouse’s diagnosis of HIV and problems in obtaining proper care; current involvement in hemophilia risk reduction counseling; lack of counseling for self and children after spouse’s death and subsequent self-counseling; involvement with NHF, AIDS Task Force, etc.; involvement in developing Men’s Advocacy Network of the NHF (MANN); tensions between HIV-positive and HIV-negative people with hemophilia; the comprehensive care model for people with hemophilia; political issues regarding hemophilia and HIV; changes in spiritual beliefs as response to hemophilia and HIV infection
Collection Name
Hemophilia oral history collection
Subjects
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Hemophilia in children; Blood coagulation factor VIII; Kuhn, Dana; National Hemophilia Foundation
Format
oral histories
Genre
Interviews
Date
1991
Physical Description
33 pages
Note
Interviewed by Susan Resnik on September 19, 1991
Note (Provenance)
Susan Resnik, Gift, circa 1992
Language
English
Library Location
Columbia Center for Oral History, Columbia University
Browse Location’s Digital Content
Catalog Record
12169823
Also In
Oral History Archives at Columbia
Time-Based Media
Time-Based Media
Persistent URL
https://dx.doi.org/10.7916/d8-e36b-ya28
Related URLs
Available digital content for this interview.