Oral history interview with Charles Carman, 1990

 

Name
Carman, Charles (Interviewee)
Resnik, Susan, 1940- (Interviewer)
Title
Oral history interview with Charles Carman, 1990
Other Titles
Reminiscences of Charles Carman : oral history, 1990; Oral history of Charles Carman, 1990
Abstract
Childhood in New Mexico; diagnosis of and experience with hemophilia and with hospitalizations for treatment; ethic of voluntarism in hometown and its influence on him; change in treatment from whole blood to fresh frozen plasma to cryoprecipitate and to comprehensive care; issues of "denial"; lack of risk-taking behavior as child/teen with hemophilia; factors which produced many hemophilia leaders out of Ohio, versus people with hemophilia influencing those factors; involvement in local hemophilia chapters; aspects of the hemophilia "community"; experiences with discrimination on the job site due to having hemophilia; involvement in defining state standards for comprehensive care centers; involvement in National Hemophilia Foundation (NHF); problems at NHF and consequent election and experiences as its President; definition of hemophilia "community" and roles and responsibilities of each of its elements; role of the federal government in relation to the hemophilia community; "Blood Money" game/simulation of problems and outcomes in relation to hemophilia care; involvement in World Federation of Hemophilia (WFH); and its international hemophilia training centers; limitations in hemophilia care in developing countries; economic aspects of hemophilia care in the future; possibilities of future cure for hemophilia through gene therapy; changing relationship between WFH and NHF; personal philosophies and rewards of leadership in the hemophilia community
Collection Name
Hemophilia oral history collection
Subjects
Therapeutics; Hemophilia in children; Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; Health services administrators; Carman, Charles; National Hemophilia Foundation; World Federation of Hemophilia
Format
oral histories; sound recordings
Genre
Interviews
Date
1990
Note
Interviewed by Susan Resnik on September 12 and September 14, 1990
Note (Provenance)
Susan Resnik, Gift, circa 1992
Language
English
Library Location
Columbia Center for Oral History, Columbia University
Browse Location’s Digital Content
Catalog Record
12169853
Also In
Oral History Archives at Columbia
Time-Based Media
Time-Based Media
Persistent URL
https://dx.doi.org/10.7916/d8-r1p8-y437
Related URLs
Available digital content for this interview.