Reminiscences of Eugene H. : oral history, 1990; Oral history of Eugene H., 1990
Abstract
Work as a nurse coordinator at Cornell Medical Center hemophilia program; recruitment to work for Hyland Pharmaceutical company; hemophilia care in the 1950s and 1960s; ostracism and overprotection as a child with hemophilia; initiation of support group for adolescents with hemophilia at Cornell; lack of knowledge among families and people with hemophilia while at Cornell; involvement in creation o f Patient Family Teaching Guide; participation in the Nursing Committee of National Hemophilia Foundation; aspects of the hemophilia "community"; issues of denial and acceptance in people with hemophilia; aspects of independence versus interdependence in people with hemophilia; evolution of products for the treatment of hemophilia; move from nursing to work for blood product manufacturing company; first awareness and reaction to HIV in the hemophilia community; usefulness of hemophilia care model for other chronic diseases; uses of genetic engineering to treat/cure hemophilia; involvement in research projects to development new products to treat hemophilia; differences and similarities in HIV between people with hemophilia and other populations; issues of stigma and prejudice for people with hemophilia and people with HIV
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Blood products; Hemophilia in children; H., Eugene; National Hemophilia Foundation
Format
oral histories
Genre
Interviews
Date
1990
Physical Description
36 pages
Note (Biographical)
Eugene H. is a pseudonym for the narrator that Susan Resnik used in her book Blood Saga: Hemophilia, AIDS, and the Survival of a Community
Note
Interviewed by Susan Resnik on October 26, 1990
Note (Provenance)
Susan Resnik, Gift, circa 1992
University of North Carolina Chapel Hill, Health Sciences Library, Gift, 2018