Oral history interview with Eugene H., 1990

 

Name
H., Eugene (Interviewee)
Resnik, Susan, 1940- (Interviewer)
Title
Oral history interview with Eugene H., 1990
Other Titles
Reminiscences of Eugene H. : oral history, 1990; Oral history of Eugene H., 1990
Abstract
Work as a nurse coordinator at Cornell Medical Center hemophilia program; recruitment to work for Hyland Pharmaceutical company; hemophilia care in the 1950s and 1960s; ostracism and overprotection as a child with hemophilia; initiation of support group for adolescents with hemophilia at Cornell; lack of knowledge among families and people with hemophilia while at Cornell; involvement in creation o f Patient Family Teaching Guide; participation in the Nursing Committee of National Hemophilia Foundation; aspects of the hemophilia "community"; issues of denial and acceptance in people with hemophilia; aspects of independence versus interdependence in people with hemophilia; evolution of products for the treatment of hemophilia; move from nursing to work for blood product manufacturing company; first awareness and reaction to HIV in the hemophilia community; usefulness of hemophilia care model for other chronic diseases; uses of genetic engineering to treat/cure hemophilia; involvement in research projects to development new products to treat hemophilia; differences and similarities in HIV between people with hemophilia and other populations; issues of stigma and prejudice for people with hemophilia and people with HIV
Collection Name
Hemophilia oral history collection
Subjects
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Blood products; Hemophilia in children; H., Eugene; National Hemophilia Foundation
Format
oral histories
Genre
Interviews
Date
1990
Physical Description
36 pages
Note (Biographical)
Eugene H. is a pseudonym for the narrator that Susan Resnik used in her book Blood Saga: Hemophilia, AIDS, and the Survival of a Community
Note
Interviewed by Susan Resnik on October 26, 1990
Note (Provenance)
Susan Resnik, Gift, circa 1992
University of North Carolina Chapel Hill, Health Sciences Library, Gift, 2018
Language
English
Library Location
Columbia Center for Oral History, Columbia University
Browse Location’s Digital Content
Catalog Record
12169857
Also In
Oral History Archives at Columbia
Time-Based Media
Time-Based Media
Persistent URL
https://dx.doi.org/10.7916/d8-fsws-p811
Related URLs
Available digital content for this interview.