Oral history interview with Regina Butler, 1990


Butler, Regina (Interviewee)
Resnik, Susan, 1940- (Interviewer)
Oral history interview with Regina Butler, 1990
Other Titles
Reminiscences of Regina Butler : oral history, 1990; Oral history of Regina Butler, 1990
Involvement in creating Hemophilia Patient/Family Model; education of families regarding home care; "cyclical" nature of hemophilia community; data collection; Philadelphia Child Guidance; working with families of people with hemophilia; relationship between gay and hemophilia communities; use of Factor VIII concentrate versus cryoprecipitate in children; early responses to AIDS in hemophilia commu nity; emotional responses to AIDS among families and caregivers; changes in make-up of hemophilia caregiving team; cooperation between area hemophilia treatment centers; involvement in NHF Nursing Committee: NHF Nursing Committee Educational Resources Project; development and use of Patient/Family Model; involvement of families of caregivers; high number of female hemophilia care providers; "safe sex" issues in adolescent people with hemophilia; changes over time in hemophilia nurse's role; current treatment for newly diagnosed people with hemophilia; relationship with Centers for Disease Control and with Maternal Child Health Bureau; possibility of future cue for hemophilia via genetic research; use of synthetic blood products to treat hemophilia
Collection Name
Hemophilia oral history collection
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Caregivers; Safe sex in AIDS prevention; Nurses; Butler, Regina; National Hemophilia Foundation
oral histories; sound recordings
Interviewed by Susan Resnik on December 19, 1990
Note (Provenance)
Susan Resnik, Gift, circa 1992
Library Location
Columbia Center for Oral History, Columbia University
Browse Location’s Digital Content
Catalog Record
Also In
Oral History Archives at Columbia
Time-Based Media
Time-Based Media
Persistent URL
Related URLs
Available digital content for this interview.