Reminiscences of Ed Gomperts : oral history, 1990; Oral history of Ed Gomperts, 1990
Abstract
Medical training in Johannesburg, south Africa; specialization in hematopathology and coagulation; work in coagulation unit and hemophilia center at Transvaal Memorial Hospital; first use of Factor VIII concentrate in South Africa; establishment of home-care system for black hemophiliacs; experiences at Children’s Hospital of Los Angeles; roles and functions of members of the hemophilia treatment t eam; denial among children and teens with hemophilia; risk-taking behaviors in this group; denial regarding HIV; isolation among people with hemophilia; differences in attitudes towards hemophilia among different ethnic communities; adoptions of children with hemophilia; early response to advent of HIV in hemophilia community; establishment of donor infusion program in response to this; first use of heat-treated Factor VIII; transmission of hepatitis B via blood products; problems screening for hepatitis B; involvement with pharmaceutical companies and issues of research and development; relationship of pharmaceutical companies to National Hemophilia Foundation and the hemophilia community; educating school nurses regarding hemophilia and HIV; "need/hate" relationship between hemophilia patient and hemophilia treatment center; California Hemophilia Council; future treatment with genetically engineered products
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; AIDS (Disease)--History.--United States; Hemophilia in children; Therapeutics; Physicians; Gomperts, Ed; National Hemophilia Foundation