Name
DeNeff, Larkey (Interviewee)
Title
Oral history interview with Larkey DeNeff, 1991
Other Titles
Reminiscences of Larkey DeNeff : oral history, 1991; Oral history of Larkey DeNeff, 1991
Abstract
Family history of activism; diagnosis in infancy with hemophilia; medical care and insurance, economic and political issues for people with hemophilia in early 1960s; alternative methods of healing; physical versus emotional caregiving; advent of home treatment with cryoprecipitate; disagreements over the use of Amicar as treatment for hemophilia; difficulties of receiving education as a person wit h hemophilia; involvement with producing educational videos regarding hemophilia for hospitals and fire departments; issues of sexual abuse; sexual activity and bleeding and consequent difficulties for persons with hemophilia; anger of, prejudice of, and lack of support by hemophilia caregivers regarding AIDS/HIV; denial of HIV/AIDs in hemophilia community; early efforts at T-cell testing; production of educational videos/Public Service Announcements regarding hemophilia and DIS; recall of HIV-infected blood products; emotional/social responses to HIV; anger towards homosexuals among hemophilia community; politico-economic factors in manufacturing and distributing various blood products; involvement with National Hemophilia Foundation’s Hemophilia Leadership and Development Project; difficulties in obtaining heat-treated blood products; "AFRAIDS (Acute Fear Regarding AIDS)" among hemophilia community and the larger community; lack of interest in HIV education at both local and national level; involvement in public relations/education for American Red Cross Regional Blood Services Committee; advent of HIV testing of blood products; early experiences with HIV illness and treatment with AZT; discrepancies in hemophilia treatments and in HIV treatments for people with hemophilia in 1980s; involvement in producing a newsletter on issues of hemophilia and HIV; involvement in HIV prevention workshops for hemophilia care providers; encouragement of tolerance of diversity
Collection Name
Hemophilia oral history collection
Subjects
Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; Hemophilia--Complications; Safe sex in AIDS prevention; Therapeutics; AIDS (Disease)--History.--United States; Patient representatives; DeNeff, Larkey; National Hemophilia Foundation
Format
oral histories
Genre
Interviews
Date
1991
Physical Description
308 pages
Note (Provenance)
Susan Resnik, Gift, circa 1992
Language
English
Library Location
Columbia Center for Oral History, Columbia University
Catalog Record
12169858
Persistent URL
https://dx.doi.org/10.7916/d8-we0s-r935
Related URLs
Available digital content for this interview.