Oral history interview with Larkey DeNeff, 1991
- Name
- DeNeff, Larkey (Interviewee)
- Title
- Oral history interview with Larkey DeNeff, 1991
- Other Titles
- Reminiscences of Larkey DeNeff : oral history, 1991; Oral history of Larkey DeNeff, 1991
- Abstract
- Family history of activism; diagnosis in infancy with hemophilia; medical care and insurance, economic and political issues for people with hemophilia in early 1960s; alternative methods of healing; physical versus emotional caregiving; advent of home treatment with cryoprecipitate; disagreements over the use of Amicar as treatment for hemophilia; difficulties of receiving education as a person wit h hemophilia; involvement with producing educational videos regarding hemophilia for hospitals and fire departments; issues of sexual abuse; sexual activity and bleeding and consequent difficulties for persons with hemophilia; anger of, prejudice of, and lack of support by hemophilia caregivers regarding AIDS/HIV; denial of HIV/AIDs in hemophilia community; early efforts at T-cell testing; production of educational videos/Public Service Announcements regarding hemophilia and DIS; recall of HIV-infected blood products; emotional/social responses to HIV; anger towards homosexuals among hemophilia community; politico-economic factors in manufacturing and distributing various blood products; involvement with National Hemophilia Foundation’s Hemophilia Leadership and Development Project; difficulties in obtaining heat-treated blood products; "AFRAIDS (Acute Fear Regarding AIDS)" among hemophilia community and the larger community; lack of interest in HIV education at both local and national level; involvement in public relations/education for American Red Cross Regional Blood Services Committee; advent of HIV testing of blood products; early experiences with HIV illness and treatment with AZT; discrepancies in hemophilia treatments and in HIV treatments for people with hemophilia in 1980s; involvement in producing a newsletter on issues of hemophilia and HIV; involvement in HIV prevention workshops for hemophilia care providers; encouragement of tolerance of diversity
- Collection Name
- Hemophilia oral history collection
- Subjects
- Hemophilia--History.--United States; Hemophilia--Social aspects; Hemophilia--Political aspects; Hemophilia--Complications; Safe sex in AIDS prevention; Therapeutics; AIDS (Disease)--History.--United States; Patient representatives; DeNeff, Larkey; National Hemophilia Foundation
- Format
- oral histories
- Genre
- Interviews
- Date
- 1991
- Physical Description
- 308 pages
- Note (Provenance)
- Susan Resnik, Gift, circa 1992
- Language
- English
- Library Location
- Columbia Center for Oral History, Columbia University
- Catalog Record
- 12169858
- Persistent URL
- https://dx.doi.org/10.7916/d8-we0s-r935
- Related URLs
- Available digital content for this interview.